7/14/2023 0 Comments Transition table tool![]() ![]() If you become pregnant, can you explain how seizures affect your pregnancy? Ĭan you explain how seizure medications and birth control medications affect one another? Seizure frequency for patients with epilepsyĭo you know how to keep track of your seizures?Ĭounseling for women of childbearing potential with epilepsyĬan you describe how seizures can affect your ability to have children? New EpiTRAQ question ( Subscale Placement) ![]() We referred to this modified, epilepsy‐specific instrument as EpiTRAQ. We placed each new item into one of the TRAQ subscales. We selected fifteen elements that were pertinent to adolescent care and important for proper transition and worked through several revisions to craft item wording that would both reflect the AAN measure descriptions and fit with the response options of TRAQ. Led by one team member who was involved in the development of those measures (AP). To determine the epilepsy‐specific modifications, we reviewed the 20 American Academy of Neurology (AAN) epilepsy quality measurement set updates Therefore, we structured our new epilepsy‐specific tool as an expansion of TRAQ, maintaining all 20 questions, the fixed‐choice response options, and organization into five subscales. This dual‐option structure would facilitate the future EHR adoption, as our epilepsy‐specific tool would utilize the same response format as a general tool used in other clinics. We determined that TRAQ offered the option of modification for use in epilepsy clinics, while maintaining the core TRAQ structure for use in other clinical settings. The psychometric properties of TRAQ have been reported previously.Īn evaluation of ten transition assessment instruments named TRAQ as the best‐validated tool and the only tool with adequate content validity, construct validity, and internal consistency. Each TRAQ item is scored on a scale of 1‐5, representing the lowest level to highest level of readiness, from least to most independent based on the following fixed‐choice responses: 1 = No I don't know how 2 = No but want to learn 3 = No but learning 4 = Yes have started and 5 = Yes always do this when I need to. The TRAQ includes 20 items, organized into five subscales: managing medications, appointment keeping, tracking health issues, talking with providers, and managing daily activities. (TRAQ), a patient‐reported assessment tool designed for youth with special healthcare needs. In exploring these considerations, we found that colleagues had a positive experience using the Transition Readiness Assessment Questionnaire Third, we wanted to build on the experience of our institutional colleagues in administering transition readiness assessments. Second, our plans included eventual adoption of the tool into our institution's electronic health record (EHR), so we wanted a tool that could easily be converted to that format. First, to minimize the burden of implementation in the clinical setting, we wanted a tool that could be completed in a short amount of time (eg, in the waiting room prior to an appointment) with minimal staff assistance. We had three key considerations in developing the epilepsy‐specific tool. Therefore, our objective was to design and validate a condition‐specific transition readiness assessment tool for administration to adolescents and young adults with epilepsy and without intellectual disability in the clinical setting. However, youth with epilepsy need additional condition‐specific knowledge and information that are not covered in general assessments.Īt the same time, assessment tools must be brief and easy to implement in the clinical setting in order to gain widespread use. General transition readiness assessments are useful in addressing basic elements of self‐management of health and health‐related skills. Repeated administration of transition readiness assessments over the teen years helps adolescents and young adults-as well as their providers and parents-to recognize the knowledge and skills they already possess, and to understand where additional information, explanation, or practice is warranted. Although a structured program of transition has been recommended for children and youth with special health needs for nearly two decades,Ī recent consensus article underscores the paucity of evidence for successful transition of adolescents with epilepsy.Ī key strategy to support transition involves the use of structured transition readiness assessments to guide the process of helping youth gain experience and confidence in their ability to manage their own health care. Transition refers to the complex process of preparing patients and their families to move from the pediatric setting to the adult system of care. Improvements in treatment and overall management of childhood epilepsy have led to more children and adolescents with epilepsy entering adulthood.
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